Tag Archives: dementia

Paradise lost (and found)

Posted in February by

It’s been a little over a year since the diagnosis and about seven month since I moved in with Miss Cathy (but who’s counting right-well, obviously I am). So I guess it’s normal to be feeling a little malaise. It’s interesting that while I’m very clear that I know this is where I’m suppose to be I’m amazed that I’m still adjusting. It’s not like I thought this was going to be a cake walk, quite the contrary, I knew it was going to be hard-I just didn’t know “what” was going to be hard and “how” it was going to affect me.

I’ve been back almost a week now from a much needed vacation at the Paradise Pointe Island Resort in San Diego, CA. I have to say, I didn’t much miss being in the cold on the East coast or the chill that was in the air between Miss Cathy and me in the days leading up to our different destinations (she: down south-me: to the mid and west).

After spending a few days in Kansas City, Chad and I fly (between snowstorms) to the resort for five days of heaven. The trip was just what I needed it to be: long, quiet sunny days and starlit nights. I didn’t do much but walk on the beach, eat at one the island’s two restaurants (a lot), read, sleep and I did the requisite time in the jacuzzi.

I must admit I did very little (or no) thinking about life back here (at the laugh factory). It’s amazing how quickly I just shut it all off, I wonder if parents are able to do that if/when they can manage some time away from their children?

All’s quiet here at the apartment because Tony called to tell me that Miss Cathy decided to stay in North Carolina for an extra week. I swear to God when he told me that I felt like a death row inmate getting a reprieve from the Governor.

It’s also given me some time to sort out the confusion I was feeling before I left in search of paradise. In addition to worrying if I’m doing the right thing by Miss Cathy, selfishly what I think I’m having trouble dealing with is the thought that I’m looking at (and dealing with) my own future.

We all know that Alzheimer’s could be hereditary so I could be headed down the same road-except I don’t have any children to take the wheel and steer me in the right direction when I drive off into the dementia ditch. Oh my, listen to me, I can hear my grandmother saying, “Don’t worry about the mule going blind!” (Translation: the worst hasn’t happened so there’s no point worrying about it now).

As much trouble as Miss Cathy is having accepting her situation who’s to say I won’t be worse if (heaven forbid) I end up with Alzheimer’s. So, with that thought in mind, I’m trying to be more empathic and patient,“ There but for the grace of God go I”. A lot was left unresolved before the break but I’m back from my vacation, rested and ready for round two (this being the second time I’ve gone away for one of my quarterly “mental health breaks”).

Yesterday, I was out on long walk turning all this unresolved “stuff” over in my head when I got a call from a relative (who wishes to remain anonymous. “Anonymous” called to tell me that she’s been spending a lot of time with Miss Cathy and she thinks Tony and I are doing a wonderful job of caring for her (regardless of Miss Cathy’s apparent bitching to the contrary that we’re taking away her freedom and she’d be “fine” on her own). “Anonymous” also made a point of saying that we’re doing the right thing by NOT letting her stay by herself. She told me that from what she’s observed Miss Cathy is fine for the most part but she does have her “moments” (and you never can tell when that’ll be) when she gets confused or something just isn’t “quite right”.

“Anonymous” also said that she’s noticed that mom is very quick to temper and appears to be sitting on a lot of anger.

I gotta say, I was quite surprised by the call but since I don’t believe in coincidences I took it as a sign (and an unsolicited testimonial) that we (Tony, Suemi and I) are doing the right thing. I was almost convinced that maybe Miss Cathy had a point the last time we talked/argued (albeit a very loud one) that she could stay by herself sometime.

I was glad to get another perspective, it made me realize that it gets kinda cloudy here living in the “fish bowl”, sometimes you can’t see too clearly and the fish ahead of you looks like it’s making sense so you start to follow it-even if it looks like it’s trying to jump out of the bowl. So, armed with this new information and support I think I can hold onto the serenity I found at paradise Pointe. I just have to maintain some distance-and talk to some other fish.

Bromance

Posted in February by

Tony and William are my brother and bro respectively, one related by blood and the other by biology (7th grade bio to be exact). There’s no way I could be doing “this” without them. I know that there are support groups I can turn too and I do have a lot of friends that I can call but there’s nothing like having people here in the trenches with you. I know this isn’t a battlefield and believe me, I know I can sound like a whining asshole sometimes but they get “it” and they get me (that alone helps so much).

I’ve known William since I was twelve years old. He tells the story of the day we first met in gym class, I was (apparently) sitting on the floor hugging my knees to my chest (trying to make myself invisible I’m sure) and he came and sat beside me, said “hi” and we’ve been best friends ever since. I call him the keeper of the memories because he remembers everything about our shared history. He has the most remarkable memory, not just about us-he remembers everything.

Even though life had very different paths laid out for us; different colleges, living in different parts of the country, even losing touch for a few years here and there, the bond we formed oh so many years ago is just as strong,so we always found or way back to each other. Now that I’m on the East coast we’re living about forty minutes apart for the first time in our adult lives, which is great.

Years ago Williams’ father go sick so he made the choice to build his house next door to his parents so that he could be there to help out. Through the years he’s taken on not only his father’s care but responsibility for his mother’s wellness, too. So, he’s not only a great support system for me, I’m finding that he’s one of my guides through the process of learning how to become a caregiver. The specifics of our parent’s situations are different but at the end of the day we’re both adult children of parents that need us.

We had a chance to spend the day together not long after my discussion/argument with Miss Cathy. Our outing couldn’t have come at a better time. When he picked me up for our day together I was ready for some “me” time (translation: I just needed to get the “flock” outta that apartment). I sat in his car and listened as he drove and told me the latest story about his parents-some mishap over what was served for dinner. I don’t know, I could feel my body relax just by listening to him tell me all the funny, frustrating events of his day. It’s not that ”misery loves company”, or that I was happy to hear that things aren’t always perfect with his folks, no, it’s more like war buddies sharing stories of being “in country”. It’s not stuff you tell just anybody, lest they think you’re whining, bitching or complaining-which you’re not, you’re just “telling it like it is”, reporting from the “battle field”. He didn’t know it at the time but his telling me about his day made me feel better about mine.

Later, over dinner I told him what was going on with Miss Cathy, all about the trip and her announcement that “she’s not leaving her house ‘no more after this trip ‘down south”. We laughed about it, not at Miss Cathy but at the similarities because William had just driven his parents to North Carolina over Christmas and let’s just say,” it wasn’t a road-trip Norman Rockwell would be painting any scenes about”. I felt better just talking to him about everything because he knows me, he knows Miss Cathy and he knows the situation all too well.

As for my brother, Tony is my only sibling and he’s older than me by eleven months and one week. We were both born on a Tuesday in January, he in 1958 and me in 1959, so for three weeks we’re the same age-we’re what they call “Irish twins”. Since we were so close in age Miss Cathy used to dress us alike (she said it cut down on bickering about “who got what”) and since we looked a lot alike early in our childhood people thought we were twins. I don’t know if this gives us any “special” bond or connection but unlike William, Tony and I couldn’t be more different. None the less, even though we’ve grown into very different men from the fat, little brown butter-balls that people couldn’t tell apart as kids, we remain extremely close without having to communicate much at all.

After my day with William I called Tony to let him know what was going on. Like I said, we don’t talk often but we do call to touch base. I always think of Tony as someone that I know will be there for me no matter what I need (which in itself is a great feeling) but I forget that he doesn’t have to be called to slay a dragon or to run into a burning building-I can call him “just” to talk.

Talking to my brother after my time with William was the one-two punch I needed to make me feel a whole better about the choices I’ve made so far. I told him how I was starting to doubt “our” decisions about how we’re handling Miss Cathy and her illness. I told him that she was starting to make sense (which in and of itself should have given me pause). I told him that I was kinda confused and not so “certain” about all the pontificating I’ve been doing-to her and at her.

In no time flat he straightened me out, and I realized that I’d started to feel like Ingrid Bergman in “Gaslight” but Tony snapped me out of it before Charles Boyer could murder me in the thick London fog….RIGHT, that was a movie and I’m not Ingrid-now back to real life. What Tony did was to remind me of all that’s happened in the past year, and to give me some distance from being “in it” with her day in/day out. He did a great job of wiping away the clouds of doubt that had been gathering around me.

He reminded me that her behavior hasn’t been normal for a while now and it crossed the line of being “Oh she’s just getting forgetful” a long time ago. Also, she’d been going to great lengths to keep her decline from us, and all of this was before the fall last year that precipitated her Alzheimer’s diagnosis.

It’s funny, but if you live with someone and they are your focus you can lose some perspective (at least I was starting to). I’ve got a little book knowledge but very little experience caring for someone with a degenerative disease. So every know and then it gets confusing, “do I know what’s best for this person?” “She seems fine (now) so why deny her the freedoms she wants?”, you know, questions like that. I think that if I’d been checking in with Tony on a more regular basis then I wouldn’t have some of these questions or insecurities. His confidence in what we’re doing reaffirmed my faith that everything that can be done is being done.

I was also grateful and surprised when he offered to drive Miss Cathy to North Carolina for me. All I have to do is drop her off at his house and he’ll take it (her) from there-Hal-lay-loo! He said it was the least he could do because he appreciates all that I’m doing.

Just like my time spent with William, I hung up the phone after talking to Tony feeling so much stronger. I’m lucky to have these guys in my life-I’m gonna need them.

Up in smoke

Posted in January by

I knew Miss Cathy was going to bring up my trip and somehow, someway, some day when she did-she’d give me agida. I wasn’t sure when but I knew it was coming. And sure enough, a couple days ago it happened. I’d walked into the kitchen for a coffee refill and she was sitting at the counter with her “hot comb” straightening her hair. She said, “You’re counting down the days huh?” It was early in the am and I was still in my own little world so I didn’t really get what she was talking about so I said,” counting down for what?”

While passing a section of hair through the teeth of a very hot device she explained, “till you go to Kansas City.” The smell of burning hair was thick in the air as she used the comb to straighten her natural curls. The air would soon get thicker still for a whole “nother” reason.

“Oh yeah, that”, I thought, it’s not like I’d forgotten about my plans so much as I wasn’t bringing them up (at all in fact). I wasn’t talking about the trip because I was dreading the inevitable argument that would result. I know you’re thinking, “I’m projecting” or “I’m putting a negative out to the universe” or better yet “that on some level I ‘wanted’ the conflict.” But no, but NO, I’ve read my Deepak Oprah, I’ve had a Life-coach and know that we manifest the “story” that we tell and I’ve logged enough hours “navel gazing” during talk therapy to know fact from neurosis. So yes, I know all this and I also know that if YOU spent the amount of time with Miss Cathy that I have you’d think the same-it’s not “negativity” it’s “self preservation”.

Imagine my surprise when she said, “depending on the weather I’m going to go visit Tine while you’re gone.” Tine (Ernestine, “Tine” for short) is Miss Cathy’s youngest sister who still lives in their hometown, Henderson, North Carolina.

Well, she certainly “buried the lead” didn’t she? I was happy as could be for her but “practical me” was wondering, “how was she going to get down there?” and thoughts of me driving her “down South” didn’t exactly thrill me. I don’t know about you but to me it’s as if every mile I drive past the NC border takes a year off the calendar so by the time we’re in Henderson it’s 1952 down there-and I wasn’t born until 1959 so what does that say?!, oh well, what price freedom.

While I pondered her mode of transport she continued, “and I’ll tell you something right now (the mood in the room suddenly changing), if in two or three months you want to go someplace else you go right ahead but I am NOT leaving this house-no more!” (I could have sworn I heard a little sizzle off the “hot comb” but I can’t be sure.)

“Alrighty then, so, here we are, and here we go”, I thought. I put my coffee down, took (half) a deep breath and before I knew it (although I’d predicted it) it was October all over again. Remember, back in October when I told her about my first trip and how she tried for days to convince me that she was “well” and that she should stay home alone. She tried everything, even what I call the ”Five stages of persuasion”:

1)    Intimidation: One has to be loud and authoritative, this works best on small children with a vested interest in survival but not on adult children of parents who no longer pay your bills or wipe your butt for you

2)    Reasoning: This can only work if both parties are in denial about the disease or condition at hand

3)     Cajoling: This could include anything from the “buddy” approach in speech and body language to bribes of favorite meals or money

4)    Threats: These usually take the form of self-important statements that start with “Do you know who I am?” or “ You don’t know who you’re dealing with buddy” but realistically that can’t be backed up by any substantive actions)

5)    Self pity: This can include tears, mournful looks, pleas to God for help and as a last resort threats of suicide but once the “suicide” card is played one can’t keep throwing it down lest somebody calls your bluff

So, after going back and forth and over and over the same territory, I had to ask myself, “Was there anything different about this discussion/argument that was any different from any other discussion/argument we’ve had over the past year about whether or not she could or should be able to stay by herself for any length of time?”

To be honest, the answer was “no” but this time I just wasn’t sure-maybe I was tired. I found myself almost persuaded by her arguments and for the first time I wondered if she was indeed capable of taking care of herself alone for on week or more.

I mean, she made a strong case for it-in volume if nothing else. I listened past the anger and stubbornness, the denial and pride. She may not think I understand what she’s going through but I’m trying (I am HERE after all). To her credit she hasn’t had any accidents in months nor has she shown any lack of judgment that would put her in danger of hurting herself or others.

So, I was in a quandary, I had to admit to myself (if not to her) that maybe “we’d” (Tony and I) had jumped the gun here. Maybe she was “better” and all she needed was some time to get herself together after the events of last year. Could it be, could the doctor’s be wrong?

I mean, at the end of the day all I want is for her to be happy (and safe) and although I know what the doctors have said I’m the one living with her and from what I’ve observed she’s not doing too bad.

She was also doing her hair the entire time we were talking and it was somewhere around this point in our discussion/argument while she was straightening a section of hair that she singed the ends because she’d left the curling iron on the heat too long.

Nothing like the smell of frying hair to give you pause while you’re arguing. Since she’d just finished making a long winded, pretty well rehearsed speech about how well she could take care of herself I was tempted to use what had just happened against her but she was embarrassed enough (not to mention that it would take weeks for her hair to grow out so she’d be reminded enough of “how well she’s taking care of herself”).

So, I graciously said nothing while she sat there pulling at her burned follicles and let that be the end of the discussion/argument…….. for now.

I think I’m ready to go under

Posted in January by

Night after night Miss Cathy says, “I think I’m ready to go under”. No, she’s not channeling Dr Kevorkian; she’s just letting me know that she’s ready for me to turn off her TV and bedside lamp so that she can go to sleep. She’s not ready for the “Big sleep”- just a deep one. But, when I hear it I know that it’s a sign for me that the day is done and I’m pretty much free to be.

Recently I’d been spending my days stressing about telling her about my upcoming trip. It’s that time again, my “quarterly time-off”!(sounds like I’m working for an insurance company). My plans have been set for weeks now but I was waiting till about two weeks before (the trip) to tell her because I’ve been dreading a repeat of what happened last October when I told her I was leaving for a week (my first “time off” after being here for three months). She had no problem with me taking a trip (in fact she was happy for me) the problem started when she realized that my leaving didn’t mean that she’d get to stay alone in her apartment, it meant she’d have to go over to my brothers’ while I was gone (in her mind a fate tad amount to internment). Which also meant almost daily conversations, arguments and campaigns on her part to stay home alone. Oy Vey! It was exhausting and by the time I dropped her ass off at my brother’s “you best believe” I was in need of a holiday.

I’d remembered something that a psychiatrist told me years ago about sharing difficult news, she suggested letting the news come out of a normal activity and not to call any more attention to the news than was necessary by doing something out of the ordinary like 1) sharing it on a major holiday b) calling everyone to a specific room to share the news or 3) taking the person someplace unfamiliar to talk to them, lest you set up a future trauma that would include not just the news BUT the person, place or thing surrounding what you have to say.

So, with that in mind I set about waiting for an opportunity to tell her about the trip. The moment presented itself the other day while we were playing 3-13, the card game. She had asked if I wanted to play and at first I thought “Uggh, I am not in the mood”, then I realized that it would be the “normal activity” I was waiting for so I said “I’m in!”

It was after I’d won the game and we were still sitting at the dining room table, straightening up when I simply said,” I’ve got some news. I’ve got a trip planned and I’ll be gone Feb one through the ninth.” I know it sounds kinda dry, but I didn’t want to make a “bigger” deal out of the trip (nor did I want it to spark a major blow up either) so I opted for a “Readers Digest” version of events. After delivering my news I braced for whatever she was going to say but other than asking me to repeat the dates a couple times she didn’t say much else. I suggested that if she didn’t want to stay with Tony that maybe she could ask her girlfriend, Adele, about staying with her. That kind of just lay there so I burbled on about “too bad the weather wasn’t nicer or you could take some time and go home to North Carolina for a visit.” After chatting a few more moments we were up from the table and onto our separate activities for the rest of the day.

I gotta say, I was a little surprised by her response; maybe I’d built it up too much in my head (and believe me the quiet way she received the news was far preferable to what I’d imagined). Not sure what was coming (if anything) I kinda walked around the rest of the day “waiting” and “it” never came.

Well, it’s been three days since I gave her the news and not a peep out of her about it. Maybe I misjudged what her reaction was going to be (Nah!), maybe she didn’t hear me or maybe she’s just resigned to the way things are-the “new normal”. What I really think is that she’s just waiting for her moment (same as me) and she’ll “pop” out with something that I didn’t expect so I’ll deal with it then.

No matter, she’s given me plenty to think about at night right before “I go under”.

Sweets n’ treats

Posted in January by

Miss Cathy’s project d’jour was cleaning all the pieces in the china cabinet. I was happy to see that she was doing something other than sitting in the living room watching television (not that there’s anything wrong with that-I too continue to clock way too many hours staring into “the box”). She said she thinks it’s been at least two or maybe three years since she’s taken out all the dishes, crystal stemware and choctchkes and washed each by hand. It’s a big commitment of time and energy, delicately removing each piece and not breaking it or any of the other items that are stuffed onto the shelves.

The dining room in the apartment is rarely used, except by me to work (sometimes). I don’t remember the last time anyone actually had a meal in there. It’s not a large space and unfortunately it’s made even more uninviting by the huge “Mediterranean” style dining room “suite” that Miss Cathy brought here from one of her previous marriages. The furniture is too large for the room (I think it was designed with a Medieval Spanish Castle in mind), several of the chairs are in need of repair (meaning broken) and I was beside myself with joy when Miss Cathy suggested that I get rid of two of them not too long ago.

I took to the task of breaking down the chairs with gusto, in my mind they were just two more things standing in the way of this becoming a “livable” space instead of the stuffed animal “way-station” filled with chairs that were either uncomfortable, broken or occupied by her collection. Since the chairs were so old and wobbly (not unlike our matriarch come to think of it), it was very easy to pull them apart (I know what you’re thinking……..but, no, I NEVER think of “pulling Miss Cathy apart”). After my remark about “understanding” elder abuse I feel a need to include disclaimers ever so often lest social services may be reading “in” or someone feels the need to mistake my sense of humor for a confession of condoning or participating in aberrant behavior. All rightly then, now that that’s out of the way………..

In no time at all I had the pieces tied into two bundles ready for the trash. Unfortunately they couldn’t be recycled or used as kindling because they were made of some kind of wood composite or man-made, factory turned material. I think if you put a match to them you would asphyxiate from the smoke rising off the plastic.

So, happy that she was occupied with an activity I was off to “the city” to have lunch in downtown DC with three friends from Philadelphia who were down for the day to visit the National Portrait Gallery (and to see me, of course). We had a great time at lunch and seeing friends had the usual effect of working like a ‘tonic’ on me-I drove home energized and refreshed.

Before we walked to the restaurant from the museum where I met them I had the chance to talk to one of my friends alone about Miss Cathy. Cassandra has been taking care of her mother for years now so I was happy to have some time to compare notes and ask her advice. Our mothers do not suffer from all the same illnesses but they do have diabetes in common. No matter the particulars, if only for the benefit of being able to sit across from and vent to someone who ‘gets it”. Besides, I think there’s always something to be gained from talking to a “fellow” traveler who walks down the path of care giving.

I listened to some of her “war” stories then I shared some of mine. Then we got on the topic of “picking our battles”, we were talking about the fact that both our mothers are diabetic but love sweets, we sounded like two parents with little children feeling guilty because we’re the ones doing the shopping and have control over buying the foods they consume but find it difficult/exasperating/hard to say “no” to their requests sometimes.

Cassandra told me that what she does (on top of rationing her mom’s sugar intake-and picking her battles) is to give her mother a baked sweet potato loaded with Cinnamon, it not only satisfies her cravings for dessert it’s healthy food that can be easily digested and it helps psychologically because one doesn’t feel deprived.

I thought that was a brilliant idea and now I can’t wait to try it out on Miss Cathy, who knows, maybe I’ll serve it to here in the dining room on one of her china plates now that they’re sparkling clean.

This n’ that

Posted in January by

Not much to report as the New Year gets underway (and considering all that 2010 had to offer that’s a good thing).

Miss Cathy’s doing pretty well, its Sunday so she has her religious programs that she watches on TV in the morning and football to keep her company in the afternoon.

I’m a little concerned that she hasn’t been out of the apartment (other than to go to the doctor’s office) in a couple of weeks but her spirits are high and she says she’s enjoying being inside “out of the cold”.

Last week we went to the Doctor’s for a check up and the reports were all good, so physically she’s going great. Now I have to schedule a check up for her metal health and I’m taking her to the Dentist next week for her annual visit.

She hasn’t seen the neurologist, Dr Alemayehu for about six months now so it’s time for a check up, I’m sure there wont’ be any discernable change but we need to keep on our schedule of appointments as a matter of routine.

I have been out and about a little more than usual, thanks to the holidays and my birthday. I’m feeling more and comfortable being away from home for hours at a time, and although I haven’t availed myself of the help that’s been offered, I know that there are a few friends and relatives that I can call on to sit with Miss Cathy if need be.

Christmas day

Posted in December by

We spent Christmas day here, just the two of us. I didn’t ask her if she wanted to go to Tony’s- I mean, what’s the point after she was so adamant about NOT wanting to be there for Thanksgiving. I’d thought to call and ask them to come here for the day but first I procrastinated, probably because knowing my brother he wouldn’t have wanted to and I was feeling guilty about putting him in the position to have to say “No”. But, in the end it didn’t matter because when I called Suemi was just getting over a cold, Tony was sick and although Nile was there, Zachary had just left for a trip to Japan to visit relatives.

Late Christmas morning Miss Cathy told me that one of her girlfriends had invited her to dinner and that I was invited, too. I didn’t want to go (and said as much) but I would gladly drive her whenever she was ready.

I was actually excited for her, thinking that she’d get dressed up and have fun hanging out with her friends but she put a kibosh on that right quick. She said that she didn’t want to go either and when I asked if it was because I wasn’t going she said “No”, that she didn’t want to go “regardless” (and her friend had even offered to come pick her up!).

I gotta say, I was pretty miffed. I told her that I don’t understand how she can just sit in this apartment all the time and not go out (sometimes for more than a week) and not do anything or see her friends. “Well,” she said, very satisfied with herself, “I talk to my friends on the phone all the time.”

My first thought upon hearing that was, “Well fuck! If all you want is talk on the phone and never go anywhere I can go back to my life and put your happy ass in an old folks home.” I’m starting to understand how people can beat the elderly-not that I condone or would ever do anything like that. Again, I would NEVER touch Miss Cathy (or anybody for that reason) it’s just that it gets sooo frustrating sometimes that you can think all sorts of crazy things.

.

I’m also starting to understand how old people become shut ins-and the sad part is that she’s NOT that old.

I just don’t get it and I’m trying too. First there was the panic about going to Tony’s, okay, that’s an easy one because of my brother’s house being associated with sickness and being away from home for a long period of time-I get that (kind of). But now there’s this  “it’s too cold to go outside” excuse-which pretty much means she’s justified (in her mind) of NOT leaving these four walls until sometime in March.

Speaking of the weather-actually I’m still talking about Miss Cathy (what else is new) but today as I was washing her hair she told me she was thinking about making an appointment at a beauty parlor but her concern was not about the weather but the fact that there are “20 stairs” she’d have to climb to get inside the building.

“So.” I said,” you’ll just walk a little slower. It’s not like you have to walk the stairs everyday. Besides, you could use the exercise.”

“Nah,” was her response. I told her that I don’t understand why she even bothered to have the knee replacement surgery if all she’d going to do is be afraid to walk anywhere.

“I’d like to give YOU a knee replacement surgery and see how you’d like it.” She said.

“I’d do a helluva lot better than you, I know that.” I replied. “You talk like you’re the only person this has ever happened to, there are people older than you having this surgery and they’re jumping out of planes, running in marathons, dancing and rock climbing!”

“No they aren’t either.” She said, her voice muffled by the towel she had wrapped round her head as she dried her hair and toddled away, “I’ll bet they wish they were doing as well as I am. I think I’ve come a long way.”

Yeah well, I know you do and that’s the problem.

I don’t know, it’s been nine months since her surgery and you’d think (I thought) by now she’d be much further along than she is; better balance, more speed and less afraid of a fall- maybe that’s just my “wish” for her. The truth is, before I moved in with her five months ago I had no idea what her day-to-day life was. I didn’t know how large or small her world was.

Of course I had impressions of what I “thought” her life was like but that was based on twice weekly phone calls from twelve hundred miles away. Now that I’m here, part of me is like a parent with a child, trying not to impose my vision of who/what they should be, rather I’m trying to hang back and let her “be”.