Tag Archives: Family

Physician, “Heal Thyself”: Pt. lVe Dr A

Posted in May by

I know that I’m not trying to ‘play’ doctor.

I’m just trying to be an informed advocate for my mother. I also know that Dr A has tons of patients…good for him. I’m hoping he’s making buckets of money and buying more Ferragamo shoes.

But, I only have one (patient-not pairs of shoes) so Miss Cathy is my one and only focus.

“She came in saying that she could not see and that is what I am focused on.” Dr A said self-righteously during our telephone conversation.

“Yes, that’s true but when she came in I also told you that she’s confused and yes, I-know-that-having-difficulty-seeing-would-be-stressful-for-anyone but this is more than that, that’s why we came to you for help”, I said.

I could not believe I had to explain myself to this asshole.

The conversation continued (and believe me) it did not get much better. We agreed that she’d come back to his office in three days time and he would examine her again and explain the MRI results.

Interestingly enough I got a call the next morning from Dr A’s assistant telling me that he wanted Miss Cathy to go back to the hospital for an MRA (something he never mentioned during our ‘chat’ on the phone).

I had to wonder if my insistence on his doing something hadn’t prompted the additional brain scan.

Back in his office a few days later Dr A told us that (unfortunately) the MRA was just as inconclusive as the MRI so he said that he would confer with Dr S, the ophthalmologist.

I (unfortunately) had the same misfortune to spend several days leaving voicemail for Dr S (these guys must be reading from the same ‘script’) trying to follow up with him.

When Dr S finally retuned my call he told me that he never heard from Dr A (quelle surprise) but suggested it was time that I take Miss Cathy to (get this) yet another doctor (this one a “Low Vision Specialist”).

So, another appointment was made for a potential addition to Miss Cathy’s ‘team’ of doctors.

As for Dr A, it was becoming very clear what roles we each played in this little ‘doc’udrama.
And if you asked me (…and you didn’t but I’m gonna tell you anyway) Dr A seemed to be missing too many of his cues.

He may be the Doctor and I just the Son of the patient but I’m also Miss Cathy’s ‘Legal Primary Caregiver’ making me the Director of this little production.

And as the director I thought it was time (way past time in fact) to hold auditions and recast some one new into the role of Neurologist.

My Life Coach back in New York said to me many years ago, “If you don’t like the story that you’re telling, you have the power to rewrite it anytime you want”…and in this case that’s just what I intended to do.

Green peas and squash

Posted in August by

“ I’ve never had green eggs and ham, no, but I have had green peas and squash; a dish that’s green, surprisingly delish and too bright to miss.

Green peas and squash are not harsh, even if served on a marsh and they doesn’t smell like someone’s arse.

So, if you’re on a plane, or in a train or playing tennis on a court in the rain, eat your green peas and squash-they may look odd but they’re good for your bod. ”

Okay….Dr Seuss I’m not but believe me, you’d start rhyming too if you saw what I see in the kitchen on a regular basis.

I’m the first to admit that when I saw the concoction on the kitchen counter I thought to myself, “Oh well, the old girl’s done it this time.” There lay a large bowl brimming with what looked like something left over from an oil spill.

Out of curiosity I picked at it with a fork, further mixing the peas with the dices of squash, the onion and bits of garlic. It looked a little funny but then again, so do I and I wouldn’t want anybody to hold that against me so in the spirit of solidarity I tasted it and surprise, surprise-it was actually very good.

I wasn’t “that” surprised because Miss Cathy has come up with some cockamamie dishes in the past but she succeeds more than she fails. And God bless her; unlike Paula Dean, Rocco or any of the other chefs on the Food Network, she’s never been concerned about the visual.

Since I’ve lived here she’s come up with some of the worst and best dishes I’ve ever eaten. When presented with one of her dishes I’ve found it best not to look but to just take a leap of faith and taste.

I don’t really remember her cooking like this when I was a kid growing up; it was all very “meat and potatoes”, stick to your ribs kinda stuff.

Her “Eh, why not” attitude seemed to have started late in life, now it’s all a dash of “what was she thinking?” and a pinch of “Oh no she did-int”. Whether it has anything to do with the dementia I doubt but I don’t believe in coincidences either.

And her best rationale for the combo of green peas and squash (which she thinks is a no-brainier) is, “they’re both vegetable’s aren’t they?”

Her philosophy is that “it’s all going to the same place anyway”.…. enough said-now back to eating your color coordinated food.

The UPS man (should) always rings twice

Posted in July by

I came back to Miss Cathy’s the other day after running errands to see a notice that UPS had tried to deliver a package. As I pulled the “ups-it” off the door I saw that the “No answer” box had been checked. I had been expecting the package (a pair of cargo shorts from Macys online-nothing work related or that couldn’t keep but “I wants wat I wants”). I was as disappointed as a kid on Christmas morning that gets socks instead of an Xbox.

My options for re-delivery were to reschedule (and wait) or pick the package up myself-not exactly Sophie’s choice but still….

I was pissed because I knew mom had been home when the UPS man came so there was no reason that the package shouldn’t have been there waiting for me. I sulked into my room-childish I know but hey, apparently there’s not much going on right now in my life if a delivery from Macys is what makes my day.

I realized I was being silly and was prepared to let the whole thing drop until later that day when Miss Cathy said something that annoyed me (quelle suprize) so (petty Mr. Pettington that I am) I brought up UPS. Without missing a beat she sidestepped any responsibility for the missed delivery like Wonder Woman deflecting bullets with her magic bracelets.

“I didn’t hear anybody knock,” she said dismissively, ”You know they just tap, tap, tap on the door anyway.”

Funny, I thought to myself, it’s awfully curious that she couldn’t hear the UPS man knocking on the door in the middle of the day when old eagle ears could hear me parking my car, walking up the steps and pulling out my keys when I come home late at night (and she’d been fast asleep).

I found it interesting that she was pleading Helen Keller when the last time this happened she had a completely different rationale. Back then she’d taken the position that she wouldn’t go near the door if she weren’t expecting someone. I tried to tell her that a robber or murderer wouldn’t be so polite as to knock so chances are whoever was on
the other side was harmless-or a Jehovah’s Witness.

Besides, the door is made of solid steel with a New York worthy Medeco lock so she was well protected as long as she didn’t open it.

I was annoyed about the whole thing but it’s not like I kicked the cat (and before you forward this post to the ASPCA I’m just joking and a) we don’t have a cat and 2) I’m still grieving the death of my 18 year best friend, Missy the cat.

I went about my day and later decided to call UPS to negotiate how/when/where I could pick up my package without having to wait another day (heaven for fend I deny the world the sight of my skinny calves).

Soon after I got off my cell Miss Cathy came to my door. “I have something I need to talk to you about” she said (Never a good opener where she’s concerned-right up there with the infamous relationship killer “We need to talk”).

“You know this wouldn’t have happened if you would have bought that doorbell like I asked you, too.”

So, now it was MY fault-touché, the best defensive is a strong offense (no matter how offensive).

“I can get it myself if it’s too much for you to do,” she said, meaning the doorbell-not the package. “I’ve asked you time and time again and you just ignored me and I know you heard me” Clearly, she was on a roll, “And I didn’t appreciate when you said, “you don’t need one-no one comes to visit you anyway”.

Why….I was stunned. First of all I didn’t know what had set her off since I wasn’t…even…talking…to…her and “bee” I don’t remember saying anything as catty (or mean) as “no one comes to visit you anyway” (not out loud at least…I mean, it did sound like something I would say).

Honestly, I don’t remember if I said it or not but that wasn’t the point. She went off and I went to my happy place. I agreed to buy a new doorbell “soon” and got the hell out as soon as was politely possible.

My trip to the UPS customer center was like being at the DMV; the line was long and the workers at the counter were surly and lethargic. An hour later I had my fashion in hand and headed back knowing that I was going to be getting several more deliveries in the days ahead (what can I say…online shopping is my new addiction).

The next day I put a post-it of my own on the door that read, “UPS: Please Knock loud and Knock twice, Elderly inside, Thank you”

Senior moments: Part ll

Posted in July by

Getting to the Bowie Senior Center proved to be a test of will and fortitude. The drive, less than fifteen minutes on the highway during non-rush hour should have been pleasant enough but I had Miss Cathy in the back seat remember-the killer of all times good.

It’s not that she’s intentionally an annoying companion on the road; I think that being confined in a space with her that’s about as big as my bedroom makes me feel claustrophobic.

Don’t get me wrong I love my car, a 2001 Burgundy PT Cruiser….it’s my lifeline and literally my “getaway” car. I also use it as a “living room” sometimes when I have something intimate or important to do like a private phone call or to write in my journal un-interrupted.

I mean, can you blame me, I’m with my mother seven days a week, twenty four hours a day unless I’m off working somewhere or shopping or heaven for fend I’m out doing something pleasurable for myself like being out on a date or relaxing with friends.

Of course I have plenty of outings and a lot that I do away from the condo, but I’m never gone for long because I don’t like to be away from her for more than five (or eight hours max) and that’s usually reserved for work and not play.

But the point is, I’m never alone..except for when I’m in my car….my PT, my four wheel “safe place”.

My car, I guess, has come to represent one of the few things that’s really “mine” and mine “alone” so I guess I’m hard pressed to share my space when it’s time to put on my chauffeur’s cap and become “Hoke”.

Now that she’s riding in the back she’s given up (more or less) “back seat driving”-cue Alanis Morrisette. It seems that since she can’t see the oncoming traffic she can’t comment or react the way she used to when she was riding shotgun.

I got this little “tony-tip” from my brother and it definitely makes a difference. I’m less apt to daydream about steering the car into a ditch and walking into oncoming traffic as much (so that’s a good thing).

The problem now is that since she has so much room to stretch out in back she’s usually doing something; like emptying out the contents of her purse or snacking or building a bomb for all I know but the noise she creates is just about as irritating as her front seat car talk ever was.

Dick Cheney and Donald Rumsfeld could learn a thing or two about torture from this old woman. The constant sound of her digging through her purse makes the idea of water boarding sound like a facial.

First of all it takes a full five minutes for her to get her seatbelt on. Every time she gets in the car (which in itself is very Cirque du Soleil) she attacks the seatbelt as if it were her adversary, pulling and twisting, all the while keeping up a constant stream of jibber-jabber and bracing herself as I put the car into gear and back out of the parking space.

I had turned on her favorite country music station, as usual, thinking that would lull her into a manageable state of inertia but the twangs and warbles of the Oakridge Boys or Shania were no match for whatever she was determined to find, deep in the bowels of her handbag.

Try as a I may to meditate and focus on something else-like driving (or finding a rock somewhere on the grounds of the center once we got there and beating myself to death) nothing could distract me from the rumbling and fumbling, like the constant drip of Chinese water torture, mind numbing and relentless, as repetitive as her constantly asking me what day of the week it is, all the way to our destination.

Design on a Dime in time for New Years: Part I

Posted in January by

While I was in Kansas City visiting Chad on my (long over-due) quarterly break early in November I had a brainstorm for a Christmas gift for Miss Cathy. I got the idea to makeover her condo (a la one of the design shows on HGTV). Think “Design on a Dime” and not “Divine Design”. For one thing I’m not blond or Canadian like Candice Olsen (y’know) host of the big budget “Divine Design” and I certainly don’t have the $30 to $50 thousand dollar budgets that she spends on her gorgeous transformations.

I’d done some redecorating, a sofa here, a microwave there, what I mostly did when I moved in was alot of purging and deep cleaning that (to her defense) she simply can’t do anymore.

No, what I had in mind (and about as much money for) was something more along the lines of “Design on a Dime” the show where the challenge is to use a modest budget (usually around $3000.00) and a lot of creativity to achieve their goal.

I’ve been living with Miss Cathy for about a year and half now and the best I can say about her décor and decorating is that it’s dated-lost somewhere in the 80’s. Unfortunately it’s not the high glam or kitsch one thinks of on (now classic) TV shows like “Dynasty”, “Dallas” or even “Who’s the Boss?”- it’s more like “who was the decorator?”

Not to knock my mom or her taste (well, I am actually), we all like what we like-but does hers have to be soooo tacky and tasteless?

Quite frankly, it was depressing to wake up everyday and walk out of my little, dull white walled room with old beige caret down a hall of powder blue “faux” shag carpet (it may have been shag at one time, I’m not sure, whatever it “was” it is now a soiled, matted mess) and continue into the living/dining room covered in the same hue. There’s textured beige wallpaper (some peeling a bit around the edges-looking as if it’s given up and just wants to lay down after holding trying for decades to be tasteful and failing) and there’s the heavy “Mediterranean” furniture that was made of some material not known to man but other than wood (and heavier than a Sequoia) and not found in any province of Italy that I’ve ever seen.

Every surface is covered with knick knacks, bric a brac, chotchkes, keepsakes from a lifetime (and remember she’s seventy-three) of collecting (more like hoarding but I promised myself in the new year I’d be kind (er).

And did I mention the stuffed animals (again)? They sit on every surface either along with or instead of a chotchke. There were over one hundred in the living/dining room alone when I first moved in here and I bagged up over half and put them in the storage room but the few that remain seem to have multiplied somehow and they’ve taken over all the seating again…….but I digress, back to my “desire to design”.

Suffice to say, it was definitely time for change and seemed the perfect Christmas gift for Miss Cathy (and trust-for me, too).

Now that the idea was born I just needed to put a budget and a plan together. Upon hearing my idea Chad immediately volunteered to fly out and help but ultimately that didn’t work out but I really appreciated his gesture. I hadn’t thought about help until Chad then I thought,”Fuck, if Chad was going to fly out to help what about Tony?” so I not so much asked but called and enlisted the support of my brother, (but I soon learned in a later conversation that he would be laid up in early January through February recuperating after surgery on his Achilles tendon so he was going to be useless to me-other than financially) So, the bulk of the execution of the plan would still fall to me.

In keeping with the TV theme I thought it would be great if I could somehow get Miss Cathy to leave for a week in say, February and that would give me time enough to re-paint and re-carpet the entire condo and replace/upgrade one or two major appliances in the kitchen. So, the germ of the seed of the idea to re-decorate was born in the Midwest and I came back East eager to put my plan in action.

Early in December I started to research costs and materials, trying to stick with my (arbitrary) budget of $2000.00. I soon realized the challenge was going to not only be trying to blast Miss Cathy out of her home for a week but also trying to stretch my dollars to accomplish all that I wanted.

I got three estimates for wall-to-wall carpet. I learned that I needed about 1000 sq feet of carpet and in order to get any of the “deals” I’d negotiated the carpet needed to be installed sooner than later (throwing my schedule of a February makeover out the window and making me re-think the order in which I got things done). Originally I wanted to paint first, make a mess without having to worry about the floor then laying the carpet last). But, with no guarantee that the prices would be honored into the New Year I decided to re-vamp my “plans” and just go with the flow and let “bargains” and “deals” dictate the schedule.

I negotiated (to me) the bargain of a lifetime for the carpet (little did I know what was ahead), I was having the entire condo re-carpeted, the installers would be responsible for removal of the old carpet AND “moving” the furniture as they worked to install (there is usually an “extra” fee (per item of furniture left on the floor during the install) charged for furniture moving which can be very steep. The other estimates I got ranged from $2,200.00 to $2,800.00 (without furniture moving).

“Mike’s Carpet” (a local company that ran an ad in the “PennySaver” believe it or not) agreed to do the work for $1,500.00 cash. Granted, this isn’t the finest quality wool or Berber carpet but it’s new, it’s clean and with just me and Miss Cathy toddling around on it-how much wear and tear could it possibly get. The best thing is that it’s all the same color, “Raw oyster” (a light beige) instead of the crazy quilt of colors on the floor now-living/dining room/halls-powder blue, my room –dirty beige and Miss Cathy’s room….wait for it-blood red.

With the carpet scheduled to be installed on Wednesday the 21st, I asked Miss Cathy if she could arrange to go over to her girlfriends house for the day-sort of a septuagenarians’ “play date”. I told her I had a surprise that needed her out of the condo and to my “surprise” she said “sure”, called her girlfriend and agreed to be gone from 8 am that day till 5 pm.

With her onboard, and without any questions from her I was feeling good. It wasn’t going to be the complete “reveal” that I’d envisioned when I first came up with idea but I’d resigned myself to the notion that a series of mini “reveals” could be just as effective-fingers crossed, it was all about to begin….

Next week: Design on a Dime in time for New Years: Part II

Blessings

Posted in December by

One day last week I was sitting in the parking lot of CVS waiting for Miss Cathy to come back from buying a disposable camera. We were on our way to her girlfriend’s house for a holiday visit when she decided that she wanted to take pictures of Adele’s newly renovated kitchen. She’d been in here the store awhile so I was giving her another 15 minutes before I went in to check whether or not she was lost in one of the aisles or passed out from finally getting some exercise outside of the apartment.

When she finally returned to the car and was buckled up she told what had taken so long. Apparently she walked to the back of the store to the Pharmacy department thinking that’s where the photo center was (it’s actually located just inside the door on the right, beside the registers). She stood in line waiting to ask for the photo center location when she found herself in conversation with the lady in line ahead of her.

They got to talking about prescription drugs and how expensive they were. The woman told mom that she was distressed because her prescriptions (even though they were generic) were almost $100.00 a month and she didn’t know if she had enough money for this month’s supply.

Hearing her story Miss Cathy decided to offer the lady ten of the twenty dollars that she brought to purchase the disposable camera. The lady refused saying that she couldn’t possibly take her money and that she didn’t want mom to think that she told her plight to illicit money.

Miss Cathy assured her that wasn’t the case, simply that hearing her story made her realize how blessed she was in her life and all that she’d been given. She told the lady that she had great insurance and didn’t need to worry about her prescription costs like so many and she’d been blessed with great children and then she told her new friend about Tony and me.

In the car mom told me how years ago a woman had offered her some money when she was running short and she’d always remembered the kindness of that stranger and wanted to so the same for someone else. She said that the ten dollars wasn’t much but it was half of what she had so she offered it.

I listened to her, thinking that she’d never seen the movie or heard the expression, “pay it forward” but that was indeed what she was doing. I forget that underneath her bluster and the anger that the disease seems to taking over her personality that she’s a sweet person with a good heart.

She insisted that the woman take the money. True to form Miss Cathy told me that at that very moment she was thinking, “You betta take this money lady-I don’t offer money often-and never to strangers.”

What she said to the lady was, “please take the money, you never know where your blessings are going to come from so you should never refuse them when they present themselves.”

Grateful and touched, the lady took the money and Miss Cathy toddled off to the front of the store after the cashier told her where to go. She made her purchase and off we went to visit Adele to give her the Christmas wreath I’d made and to see her new kitchen and holiday decorations.

Blowin’ in the wind

Posted in December by

Thanksgiving was over a week ago but a conversation I had with my sister-in-law, Suemi still lingers in my mind-like so much leftover turkey you don’t know what to do with.

We found ourselves alone in the kitchen the morning after the holiday, everyone else was still passed out from turkey overdose, so we had a chance to have a private chat.

“Mom surprised me,” she said.

“How do you mean?” I asked.

“It’s been awhile since I’ve seen her and she looks so old, I’m surprised that she’s still walking so slow and using a cane. She doesn’t seem sure of her balance, always reaching out to grab onto something, like she thinks she’s going to fall. She’s how old? Seventy-three? Wow, by the way she walks and acts she looks ten years older.”

“It’s not only that”, she continued, “I can tell that she’s not the same, she’s not as confident as she used to be. I can see when I look into her face that something has changed.”

I listened, well aware of her metamorphosis into an “old lady”. Just a few years ago-before her diagnosis, she was active, independent and fearless, people were surprised when they found out how old she was. I listened, remembering who she was and quietly judging myself and wondering if I was being judged for her decline.

Suemi was surprised when I told her ho much Miss Cathy slept.

“Oh wow, that’s a lot!” she said eyes wide with amazement, “she can live another twenty years like that……just sleep, no work, no stress. A lot of old people live a long time that way.”

“Believe me I know,” I said nodding that I felt the same, “she’s like a bear hibernating through the rest of her life.”

But, she’s not completely stress free I reminded her, she still has her temper. Then I regaled my sister-in-law with some of the highlights of Miss Cathy’s rants against enemies and evils real and imagined.

I was kind of surprised that Suemi had seen so much change in Miss Cathy in just the space of three or four months.

She reminded me of the reason why I started this blog in the first place. I was very aware when I moved here that it was important to record the progression of her disease. I knew that change when come when I was busy tending to her and before I knew it ‘who she is’ would be the new normal and l would have forgotten how she ‘used to be’.

Tough as it is, these are the Halcyon days of Alzheimer’s, she’s still stage one dementia but the curtain can lift on stage two at any time and those challenges will make the previous diagnosis seem ‘quaint’ so I wanted to be sure to write it all down so that I could remind myself that it wasn’t all bad.

With caregivers, it seems that you deal with the person as they are “that day” and quickly you forget how it’s different from yesterday’s issues and challenges.

Some things, like the love you feel for them-and they for you are constant but everything else is kinda up for grabs. But knowing that, hell, and even writing about it doesn’t prepare you for an outsider’s observation (an outsider being anyone that isn’t their caregiver and hasn’t seen your loved one for awhile-be they friend or family) that validates your purpose.

Suemi held up a mirror so that I could see Miss Cathy (and myself) and it hit me that Thanksgiving this year is yet another marker of change in our family. We’re not a particularly sentimental bunch (well, I am but I’ve long maintained that someone made a scramble with the babies when I was born and I was left with the wrong people-all evidence and my striking familial resemblance to the clan aside).

Anyway, Thanksgiving became important to us as a family back in1997. It was the last time my pop was healthy enough to celebrate the holiday before cancer took him away the following spring. He’d been in the hospital just days before and the doctors weren’t holding out hope that he’d ever leave (alive) but he proved them wrong buy not only getting better, he sat at his place at Tony’s holiday table and ate like a man half his age and filled the room with his deep Barry White baritone and laughter. Since then we’ve made it a point to get together on the last Thursday in November.

And now, after not being at Tony’s last year because Miss Cathy just didn’t want to go we were all together this year but it’s different now. Not only do we have the memory of pop at the thanksgiving table to top our list of thanks, this year we add Miss Cathy’s joy and spontaneous “Star spangled banner”.

We will come together next here but the reality is that she probably won’t be the same but who knows, maybe she’ll surprise us and sing her favorite Bob Dylan song:

“How many roads must a man walk down before they call him a man?
How many seas must a white dove sail before she sleeps in the sand?
How many times must the canon balls fly before they’re forever banned?
The answer, my friend, is blowin’ in the wind
The answer is blowin’ in the wind”.

Turkey Hash

Posted in November by

I was in the car driving Miss Cathy over to my brother’s for Thanksgiving; it was quiet so I turned on the radio to pass the time. NPR was in the middle of an interview with an author (I didn’t catch his name or the title of his book) who was from a family of ten children and even though they grew up in great poverty each child went to college, became successful and distinguished themselves in many different fields.

The radio host, Diane Reims asked to what did he attribute his and his siblings’ dedication to education and life accomplishments. The author said that their mother, a woman who had very little schooling herself instilled in them a passion for learning and was the reason they were all so successful.

Upon hearing this I looked at Miss Cathy seated in the backseat through the rearview mirror and said, “Hey, they could be talking about you.”

To which she responded, “Well, where was the daddy?” “Doesn’t he deserve any of the credit?” “Makes me sick how it’s always the mother that gets all the praise.”

“Oh my, the dealer passes”, I thought to myself. Instigating a rant about how fathers don’t get enough credit for their offspring’s success was not my intent. Listening to the author reminded me how much my brother and I owe Miss Cathy. I was just trying to pay the old bird a compliment as we were stuck in traffic on our way to eat a bird of the Butterball variety.

I tried to interrupt to remind her that I trying to give her a compliment but it was too late; she was already in full career. But, like so many conversations I have with her these days you never know what she’s going to say or how long she’s going to stay on topic.

I have learned that her ‘’default’ response is something negative (see exchange above for proof). I took a detour off t Interstate 95 (it can take you from Maine to Florida to see grandma and that’s apparently what everyone was doing that Thanksgiving morning).

The rest of the ride was pleasant; I’d switched to the classical station for the duration of the drive to avoid any further conversation.

Thanksgiving dinner at my brother’s had become a tradition for years after my Pop died as it was the last time the entire family had been together before he died in 1998. We didn’t come over last year because Miss Cathy just didn’t want to leave home so it was nice to all be together again, even if it was just for a couple of days.

As always, my sister-in-law, Suemi set a beautiful table worthy of a photo spread in Food &Wine magazine. We all took our usual places at the table, assigned long ago; Tony and Suemi at the ends, Nile across from me and Zachary across from Miss Cathy with Tony on her right. After the prayer led by my mother we began the meal. The meal started and we’d all begun to fill our plates and bellies with all the traditional goodies in front of us. We were chattering along, nothing memorable or of great consequence, just the typical conversations families engage in when they’re all together for a holiday when all of a sudden Miss Cathy started to sing,” what so proudly we hail from the twilight’s last gleaming”.

When she got to the end of the stanza she wasn’t sure of the next line so I started singing along, feeding her the words, encouraging her to continue. So she sang on, this time louder and with more confidence, her voice clear and surprisingly melodic.

Tony joined in and soon the three of us were singing as the other looked on smiling. Tony nodded for Zach and Nile to join in and Suemi did as well, the entire family singing what we remembered of he Star Spangled Banner:

Whose broad stripes and bright stars, thro’ the perilous fight
O’er the ramparts we watched, were so gallantly streaming

And the rockers’ red glare, the bombs bursting in air
Gave proof thro’ the night that our flag was still there

O say, does that star-spangled banner yet wave
O’er the land of the free and the home of the brave

When we finished I led the applause. It was a wonderful, corny, spontaneous movie moment, out of nowhere and out of context. A lot like my life living with Miss Cathy; unexpected and full of surprised-just without the singing usually.

This ‘n that lll

Posted in November by

I just returned from a week off. It was my first break since going to New York to teach for a few days every other week for a while last summer.

I had committed to taking a week for myself every three months but that had fallen by the wayside. For whatever reason I felt I didn’t need the time away (could that mean that I’m actually starting to ‘like it’ here-naw). But months ago after Chad’s visit here I’d spontaneously decided to go back to Kansas City to spend a week with him.

Since Miss Cathy has been doing so well I didn’t feel bad about leaving her alone in the apartment and as is my rule I didn’t tell her about the trip till one week before my departure. She took the news in stride and there wasn’t the usual daily peppering of questions that have seasoned past trips.

Her only response when I told her my plans was, ”Oh, well I’ve gotten used to you being around so I don’t feel like I really need a break from you.”

“Okay.” I thought to myself, “these little getaways aren’t really for you” but said nothing and smiled, not wanting to take the focus off of her.

I gotta say, it was easier being away this time. A few days before my departure I made a run to the grocery store to make sure she’d have all her favorite foods and reminded Ron (her ‘other son’ from upstairs) to check in on her as well as reminding her other biological son, Tony.

While I was gone I didn’t worry (much) and called every other day, hearing from her only once or twice and it was good that when she did call she told me that she’d gone out with her girlfriend once (she actually left the apartment) in addition to the usual ranting about ‘relatives of unknown origin’.

My only concern when we talked was when she told me that one day there was a knock at the door and when she asked who it was the person said, “Is your son at home?” (this is worrying because I don’t have any ‘friends’ in the area that would just drop by unannounced) but she only talked to him through the door and didn’t give the stranger any information that would lead him to think she was alone.

She call Ron immediately after and he suggest that she leave the alarm system on even while she’s in the house during the day and not just at night when she goes to bed.

The other thing that concerned me was that she didn’t sound as if she was eating enough vegetables (which are usually a mainstay in her diet) but I was relieved to hear that most of what she was making to eat didn’t involve a lot of cooking on the stove.

Tony came on the weekend to hang out with her and then (to my surprise) took her to Charlestown Races so she could gamble (which for her means sitting at a nickel or quarter slot machine and pulling the arm until her shekels ran out-one of her favorite past-times).

I left last Sunday morning and arrived back here last night a week later. Ron picked me up at the airport and reported that all was well and Tony was going to be bringing Miss Cathy back sometime Monday morning.

So, thanks to my brother(s) I’ve got a few moments to myself to unpack and ease back into life here.

Oh, spoke too soon….I see them pulling up outside. Time to go to work………

People who need people

Posted in November by

One day last week I was listening while Miss Cathy was talking-there’s really no other way to describe a ‘conversation’ with her really. She was telling me that she’d decided against having a girlfriend drop by for a visit. I listened as she complained about how this particular friend was someone who hated to be alone and how she constantly needed to be around someone. Mom made a point of “not” empathizing with her friend’s personality trait, saying that she didn’t understand people ‘like that’ because she was perfectly fine to be on her own.

“I get tired of her calling all the time, she’s so persistent”, she fumed, “wanting to come over here or for me to go over there. Stay home, I’m tired, entertain your own damn self.”

Exactly what she was ‘tired’ from I had no idea-a long hard day of watching TV perhaps. Frankly, I’d have thought she’d relish the opportunity to talk to someone (anyone), lord knows the two of us don’t do much of that anymore, we’re like that old married couple that’s heard each other’s stories and jokes one (or six hundred and twenty-eight) times to many-at least I feel that way.

I know it all sounds a little harsh but what do I know, they’re her friends and she’s got a right to have whatever feelings she wants to have about them. I just worry that one day she’s going to wake up and realize that she’s alienated them all and there’ll be no friends left to rail against.

She becomes quite agitated when she’s talking about something that’s happened between them. She gets herself wound up like a clock and her face becomes flush with emotion. I’ve warned time and again that she’s going to give herself an aneurism investing so much emotion in telling her tales. I try to remind her to just ‘tell the story’ and not to ‘re-live’ it-she’d have been a great Method actor.

Besides, the girlfriend she’s talking about is the very person that helped find her after she’d had her fall last year. If it wasn’t for the ‘persistence’ of this friend there’s no telling if or when anybody would have found her on her bathroom floor.

That fact alone would give that person a lifetime pass (in my book anyway) to come over or have me do whatever they wanted (you want to go to the Piggly Wiggly-no problem, I’ll push the grocery cart. Drop by at seven a.m. for a chat-I’ll put the kettle on). But hey, that’s just me.

I know she’s grateful and I know that she loves her friend but lately I’m noticing a shift toward the negative.

She’s also full of contractions, I know for a fact that as much as she rails against her friends and family she can work herself up into a panic if a few days pass and she hasn’t heard from one of them on the telephone. And telephone she does, morning noon and night, I hear her on the phone talking but that’s not how you maintain relationships (especially one’s that are within a ten-mile radius).

Besides, isn’t it better to have something to look forward to-even if it’s a visit from a friend you’re not particularly crazy about (that day) instead of just watching TV and napping until it’s time to go to bed at night? I worry that at the rate she’s going all she’ll have is the past because there’ll be no future (friendships anyway).

Maybe she has some variation of ‘survivor’s guilt’. While she’s grateful to her friend for helping to save her life maybe it’s hard to be around her now because her friend reminds her of that day and her diagnosis. I don’t know, I’m not ‘in’ their friendship. I just know that Miss Cathy seems to have less time in her day for people and the irony is that all she has is time.

Sometimes I wonder if being ornery is because of her age or her diagnosis, it’s hard to separate sometimes. Unfortunately, It’s not like I have a ‘quote, un-quote’ ‘normal’ seventy-three year in a closet somewhere that I can pull out as a control group-you know, some old person that I can gauge their reactions against hers.

No, all I have is Miss Cathy, she’s my ‘people’ and cranky or not, consistent or not, I’m still one of the luckiest people in the world because I do need her (although some days I’d just like a less chatty, nicer version of ‘her’).